Becky was born with a rare genetic disorder called Neurofibromatosis (NF). This disorder causes tumors to form on nerves anywhere in her body causing chronic pain. Since nerves conduct sensory information to all parts of the body, she is constantly in pain. She has experienced more visible deformities with the craniofacial neurofibromatosis as she has had tumors removed from her head and face, which has also impacted her vision.
She is really thankful that she hasn’t needed to make a lot of changes to her home to accommodate her needs physically, but shares a wealth of information and tips on how to interact with people who look different and have chronic pain.
Location: Lyndhurst, Virginia, United States
Watch the interview: